The CRB1 Fund was created by a group of families.
Our kids are beautiful, talented, athletic, gifted, entertaining, and funny.
We are working to add one more characteristic to the list: sighted. 


Our kids are blind from a genetic disease called
Leber’s Congenital Amaurosis (LCA).
 LCA is the most severe form of Retinitis Pigmentosa.  
All of our children have the CRB1 gene mutation that causes their LCA.


Our mission is to fund CRB1 research
and move to a cure as soon as possible.
The CRB1 Fund is a 100% volunteer organization.
100% of the money donated goes directly to the research!